See also our related blogs for the Keller Laboratory and the Pediatric Preclinical Testing Initiative.

Tuesday, October 18, 2011

Patient access to their own research data?

" Key objectives: Enable patients to obtain their own data back from samples they donate to trials "
For more about the Portable Legal Consent Project at Sage Bionetworks, click here.  

update 3/22/2012:  "DNA donor rights affirmed"... see what an NIH working group now says about patients' right to know on incidental findings.  

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