Pediatric Grand Rounds: COG Chair, Dr. Peter Adamson

Dr. Adamson will be giving the Robert C. Neerhout MD lecture on Thursday Nov 3 at 8am in the Doernbecher Children's Hospital Vey Auditorium (11th floor).  His lecture will be entitled, "Childhood Cancer Research: 21st Century Science, 20th Century Clinical Trials."
  
for a stream of the archived lecture, click here.  

Patient access to their own research data?

" Key objectives: Enable patients to obtain their own data back from samples they donate to trials "
  
For more about the Portable Legal Consent Project at Sage Bionetworks, click here.  


update 3/22/2012:  "DNA donor rights affirmed"... see what an NIH working group now says about patients' right to know on incidental findings.  

Dr. Abraham presents at DIPG Conference (NIH)

Last week PCB senior scientist, Dr. Jinu Abraham, presented his invited talk entitled, "Rapid Preclinical development of targeted therapy combination for DIPG" at the DIPG Consensus Conference, which was held October 6-7^th at NIH's Bethesda campus.  A subject of the conference was determining the role of biopsy in the standard of care for this form of brainstem high grade glioma.  Noted to be equally important, however, is the search for a combination of targeted agents that makes this tumor a uniformly survivable condition.  
  

Hemophilia Program Fundraiser

This fundraising event is in cooperation with the Hemophilia Foundation of Oregon and all proceeds are shared.  Funds generated from this event are typically used for program research efforts. 

Please join us on October 16^th.  Admission is $150 per person.  Please also share this invitation with anyone you think might be interested in attending and supporting the Hemophilia Center and the Hemophilia Foundation of Oregon.  RSVP to 503-209-7539 or marita@hemophiliaoregon.org.

Pediatric Cancer Teleconferencing to Anchorage & Medford

Through the The Caroline Pryce Walker Conquer Childhood Cancer Act of 2008 (3R01CA133229-4S1), the National Cancer Institute has funded purchase and installation of Video Teleconferencing equipment at two community-based pediatric practices that refer the greatest number of pediatric sarcoma and other childhood cancer patients to OHSU.  These practices are Providence Alaska Medical Center (Anchorage, AK) and Medford MD (Medford, OR).  The new equipment allows two way video conferencing but has also camera capability to use for face to face patient consultation as well. The Alaska site routinely participates in tumor board and a bi-weekly teleconference to review shared patients, and the Medford site uses this resource for general education as well as participating in tumor board and care conferences.  Since the implementation of videoconferencing this year, twelve new pediatric cancer patients from Alaska have been referred for coordinated care or consultation by the OHSU multi-disciplinary physician team.